The Mission of Kristi’s Heart Hugs is to provide personal communication, encouragement, and assistance for children with congenital heart defects (CHD) and their families.

 

Kristi’s Heart Hugs creates a positive, supportive environment where CHD individuals can share their stories. No exclusion of events or activities shall be made upon the base of race, color, creed, sex, or national origin.

 

 

 

We do not provide medical advice, but we do have information which can supplement what doctors and other professionals provide.

Kristi was born with Tetralogy of Fallot and Pulmonary Atresia, which basically meant Kristi was born with a broken heart.

 

After her 3rd open heart surgery in 2008, she realized there is very little support for children and their families affected by congenital heart defects.

After some thought, Kristi created a Facebook support group called Kristi Heart Hugs. Within days, three families had requested to be members of Kristi’s support group.

It wasn’t long before Kristi’s Heart Hugs had several hundred members, which consists of parents and about thirty children affected by a congenital heart defect, with the majority living North Dakota.  Each child receives a welcome package which consists of a giraffe, a journal which allows the family to keep track of the medical journey and a bracelet labeled Kristi’s Heart Hugs.

 

The mission of Kristi’s Heart Hugs is to provide personal communication, encouragement and assistance for children with congenital  heart defects (CHD) and their families.  Kristi wants children and their families to know that just because you have a heart defect, you do not have to stop living your life.  Kristi’s Heart Hugs provides comfort and inspiration to these children and their families when they are struggling and start to lose hope.

 

A common misconception for people with heart defects is that once you have had a repair done, your illness is over and you go back to your normal life.  However, this is not the case.  Kristi often hears people say “Oh, you had surgery, I thought you were fixed”.  Have a heart defect is a lifelong condition and the patients are required to follow up with a pediatric cardiology for the rest of their lives.

Kristi’s Heart Hugs is a 501 (c) (3) non-profit organization.  Your contributions can make all the difference for one family affected by a congenital heart defect.  If you are interested in supporting Kristi’s Heart Hugs financially, please click here to donate :


 

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